I’m not saying this to complain and make you feel sorry for me. I’m saying the following to raise more awareness for what Crohn’s disease and ulcerative colitis are like for people.
Today I felt amazing, so good. My gut was calm, I only had one bowel movement and it was grrreeeeeeeaaaat. Trust me, those of us with IBD celebrate our good poops (and so should you).
At 4:50p I get an urgent feeling to use the bathroom ASAP. Luckily, I’m home and it’s a few feet a way. Even then, I panic to get myself on the toilet in time. The worst is unbuckling my belt.
I get myself seated, and there’s a pause, a calm before the storm. Then I feel some abdominal pain, with slight gurgling.
I can tell the stool is moving fast, and then I have my bowel movement of mostly diarrhea.
It wasn’t painful in itself, but what is painful is the psychological toll this can take on someone who is new to the disease. Luckily, I’ve had it for 15 years, so I am used to this by now.
But imagine being new, and not understanding why you don’t have control over your body like you used to.
Imagine the frustration you’d have after feeling fantastic one moment, and fatalistic the next.
Imagine if you were told you’d feel this way for the rest of your life.