(64 comments, 162 posts)
Director - WANTED: Crohn's End
Home page: http://crohnsend.com/
Posts by Reid Kimball
I would love to have your feedback on a new document I created today, Options for Treating IBDs.
I created this because many people are not aware of most of these treatment options. I do not want this document to cover every single treatment that exists, there are hundreds, but to be a beginning point for people to do more research.
It introduces diets, supplements, drugs and unconventional treatments.
On August 5th and 6th I attended the first annual Ancestral Health Symposium, which is run by the Ancestral Health Society, a non-profit dedicated to developing solutions to our current health challenges from an evolutionary perspective. They ask questions such as, “How does health today compare with the health of our ancestors?” and “What makes up for any perceived differences in our health from our ancestors?”
“If you always do what you’ve always done, you’ll always get what you always got.”
Let’s think about this quote for a moment.
Are you someone who’s tried the Specific Carbohydrate Diet but it didn’t work for you? Or have you tried it only to feel like you’ve achieved decent health, but know that there’s another 20% to be squeezed out but seems impossible to achieve?
During my last interview trip with Tara Marie Rosas, she told me how the very foods that were recommended by her gastroenterologist, such as white rice, pasta and mashed potatoes from the low-residue diet ,  were in hindsight, the very foods that hurt her by continuing her symptoms.
The low-residue diet is the only diet that is recommended by gastroenterologists for symptoms of bowel pain, otherwise, they advise patients to eat whatever they want, because they believe diet plays no role in inflammatory bowel diseases (IBDs).
This is a Norwegian review of the use of low-dose naltrexone in various autoimmune conditions, including Crohn’s disease and ulcerative colitis.
Original article: http://tidsskriftet.no/article/2099398
I once called a local compounding pharmacy to ask if it’s possible that pharmaceutical companies could pick up LDN, repatent it and hike up the price to profit from it’s wide spread use. The pharmacist I spoke with said absolutely, it happens all the time and it can be beneficial for patients because it can get promoted more, they learn about it sooner and see benefit.
But the following quote from the article in the final “Talk” section makes me see that this might not happen.
The pharmaceutical industry seems to have little interest in investigating the effect of low dose naltrexone, probably because the patent has expired. The treatment is most likely in conditions where the so-called biological drugs may be appropriate. Such drugs are very expensive…
That is a frickin’ excellent point! The companies that have developed biologic drugs have invested millions (I’m assuming, haven’t researched) of dollars into the development and marketing of their biologic drugs. To abandon that freight train and switch to LDN will hurt them economically. But even more important is that the biologic drugs are expensive, and even if they hike up the price of LDN, they probably won’t be able to match the price of their biologics, so they still will want to use the biologics for profit potential.
… and can be associated with several serious side effects. If naltrexone in low doses proved to be effective, it is conceivable that the use of several of the most expensive drugs can be reduced for some patients. Such potential savings should encourage research in the direction of the public.
It’s rare to see such a clear cut statement like that in a medical article or study, not sure why it is, perhaps it has to do with funding.
Stress can be a huge factor in ones health, especially with a digestive condition. Research shows stress negatively impacts our microbiota and harms our ability to digest food and regulate the immune system.
I just saw the following list of 10 commandments for reducing stress in our lives and found it to be a great reminder. I try to follow all of these but it can be difficult at times. I’m glad there’s a list such as this to remind me how to treat myself right.
10 Commandments for Reducing Stress in Your Life
- Thou Shalt Not Be Perfect, Or Even Try To Be
- Thou Shalt Not Try To Be All Things To All People.
- Thou Shalt Sometimes Leave Things Undone That Ought To Be Done.
- Thou Shalt Not Spread Thyself Too Thinly.
- Thou Shalt Learn To Say No.
- Thou Shalt Schedule Time For Thyself And Thy Supportive Network.
- Thou Shalt Switch Off And Do Nothing Regularly.
- Thou Shalt Be Boring, Untidy, Inelegant, and Unattractive At Times.
- Thou Shalt Not Even Feel Guilty.
- Especially, Thou Shalt Not Be Thine Own Worst Enemy But Be Thine Own Best Friend.
A friend of mine, Pat Miller created a thread at IBDSupport.org listing many conventional and alternative approaches to treating inflammatory bowel diseases. I thought it worth sharing.
Other than low energy in the late afternoon and as I write this (eyes are heavy) I felt great today. No pain, little to no gas, and one solid BM today early in the morning.
I really think Kefir is making a difference. My gut feels so calm. I was drinking a commercial brand, but tonight I have a batch that will finish fermenting in a few hours. I’m interested in seeing if it will be more potent.