Film Issues

IBD Talk 08.20.2011

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Maybe this will become a new running thing, maybe not. But I often make comments on Facebook to other people that feature my current thinking on what inflammatory bowel diseases are or how to heal from them. Sometimes I wonder if others will find them useful, so I’ll try to post more of them on this blog. Here’s one I wrote just now.

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Norwegian Review of LDN

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This is a Norwegian review of the use of low-dose naltrexone in various autoimmune conditions, including Crohn’s disease and ulcerative colitis.

Original article: http://tidsskriftet.no/article/2099398

Translated article: http://translate.google.com/translate?js=n&prev=_t&hl=en&ie=UTF-8&layout=2&eotf=1&sl=no&tl=en&u=http%3A%2F%2Ftidsskriftet.no%2Farticle%2F2099398&act=url

I once called a local compounding pharmacy to ask if it’s possible that pharmaceutical companies could pick up LDN, repatent it and hike up the price to profit from it’s wide spread use. The pharmacist I spoke with said absolutely, it happens all the time and it can be beneficial for patients because it can get promoted more, they learn about it sooner and see benefit.

But the following quote from the article in the final “Talk” section makes me see that this might not happen.

The pharmaceutical industry seems to have little interest in investigating the effect of low dose naltrexone, probably because the patent has expired. The treatment is most likely in conditions where the so-called biological drugs may be appropriate. Such drugs are very expensive…

That is a frickin’ excellent point! The companies that have developed biologic drugs have invested millions (I’m assuming, haven’t researched) of dollars into the development and marketing of their biologic drugs. To abandon that freight train and switch to LDN will hurt them economically. But even more important is that the biologic drugs are expensive, and even if they hike up the price of LDN, they probably won’t be able to match the price of their biologics, so they still will want to use the biologics for profit potential.

… and can be associated with several serious side effects. If naltrexone in low doses proved to be effective, it is conceivable that the use of several of the most expensive drugs can be reduced for some patients. Such potential savings should encourage research in the direction of the public.

It’s rare to see such a clear cut statement like that in a medical article or study, not sure why it is, perhaps it has to do with funding.

GAPS – Day 52 & Blood Lab Results

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Other than low energy in the late afternoon and as I write this (eyes are heavy) I felt great today. No pain, little to no gas, and one solid BM today early in the morning.

I really think Kefir is making a difference. My gut feels so calm. I was drinking a commercial brand, but tonight I have a batch that will finish fermenting in a few hours. I’m interested in seeing if it will be more potent.
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Your Input Please

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This summer I hope to interview several doctors about conventional treatments, alternative treatments and digestive conditions. Some will be specialists others more general.

I would love to hear from you any questions that you want me to ask a doctor, health professional and experts. NOTE: There is no guarantee I will be able to ask everyone’s questions because I may not have much time to interview some of the experts. Thank you for your understanding.

The below is only a small sampling of all the topics that may be covered in my interviews with medical and health professionals. I want to be the voice for patients all over the world who are looking for answers on how to heal and overcome digestive conditions, please don’t be shy and let me know what some of your questions are so that your voice can be heard and responded to. You can leave a comment below or send me an email at info -at- crohnsend.com. Don’t forget to tell me who you want to answer your question. :)

Here are some topic suggestions to spark questions from you:

  • medical marijuana
  • low-dose naltrexone
  • bacteriotherapy
  • probiotics
  • helminthic therapy
  • acupuncture
  • yoga
  • meditation
  • emotional freedom techniques
  • diets
  • glutamine
  • vitamin d
  • drug research
  • drug funding
  • safety
  • ccfa
  • ccfc
  • crohn’s disease
  • ulcerative colitis
  • celiac disease
  • irritable bowel syndrome
  • statistics
  • humira
  • prednisone
  • remicade
  • cimzia
  • pentasa
  • children
  • adults
  • men
  • women
  • patient empowerment
  • conventional, integrative, alternative medicines
  • post traumatic stress disorder

Documentary Update – Vanishing Medicine

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This week I am traveling to Green Angel Gardens, a farm in Long Beach, WA. Because my documentary is about healing from digestive conditions using alternative medicine, you might be asking yourself, “What does a farm have to do with your documentary?”

Everything.

Despite having Crohn’s disease, I have been medicine free since 2007. Looking at my calendar today marks the 30th day in a row without any symptoms of Crohn’s. No diarrhea and no abdominal pain.

The diarrhea and pain were a daily occurrence for close to 8 years, until I started a new “healthstyle” called the Specific Carbohydrate Diet. I don’t call it a diet because it is so much more to me.

It’s part health regimen and part lifestyle. Since 2004, with all of the fantastic results I’ve seen with my body, it’s opened up my mind to ask some serious questions about our health care system in the United States and the role that food plays in our healing from diseases.

As I learned which foods to eat while on SCD, I saw I did better with organic, locally grown food. One day I had an epiphany and realized that all of my food came from a farm and not a factory. My respect and love for the environment grew even stronger.

It was the earth that was healing me, not man’s inventions; those only brought stress, tears and pain.

Farms have been integral in my healing journey and I know it has for many others. Geoff Curtis is currently working at Green Angel Gardens and has Ulcerative Colitis. He believes the land has the ability to heal him.

Unfortunately, that land is being threatened right now due to foreclosure from their bank. In recent years, because of the massive recession, teetering on depression at times, farms all across the United States have been vanishing.

According the United States Environmental Protection Agency’s Agriculture website, today there are about 2.1 million farms. In 1935, there were 6.8 million farms. This is a significant drop. This table shows the downward trend from 1990 through 2007.

I personally find this devastating. There are people in this country who don’t have access to locally grown, healthy food and yet it just might be the medicine they need to overcome their digestive condition. Their medicine is vanishing and they don’t even know it.

I’m looking forward to talking with Larkin Stentz, the owner of Green Angel Gardens and Geoff Curtis about what farms mean to the American people and their healing journey’s.

In the meantime, if you would like to help there are several ways you can:

  1. Donate $25 to help Green Angel Gardens raise $9,000 before April 15th, date of foreclosure. You can read this post about their need and this update about the event. Donations are accepted via their PayPal link, found on the right side bar of their website.
  2. Visit localharvest.org and eatwild.com to find locally grown, organic food in your area. Visit your farmers and let them know you care about the important work they are doing by spending your hard earned dollars to get your food from them. They will thank you and so will your body, :)
  3. Please share this post with your own friends, family, co-workers via email, Twitter, Facebook and so on
  4. Are you located near the Oregon-Washington border? Come down to the fundraiser event this weekend, April 9th (details). It would be wonderful to meet you!

First Scientific Study of How SCD Works

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Update (March 13th, 2011)
I was told Rush University Medical Center now has all the required SCD patients and are no longer accepting people into the study. They are however still looking for patients who are not using SCD and have been officially diagnosed with Crohn’s disease, ulcerative colitis and indeterminate colitis.

Original (January 11th, 2011)
I am really please to share with you the news that Rush University Medical Center’s Department of Gastroenterology in Chicago is conducting a study to determine in what way the Specific Carbohydrate Diet works for patients with Crohn’s disease, ulcerative colitis and indeterminate colitis.

If you are interested in participating in the study, download this .pdf for contact information and requirements in order to participate. Here’s a webpage too.

I am participating in the study myself and hope you can as well. This diet is too important not to be studied and taken seriously. Thanks to Rush University for doing this!

Bad Days

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bad days

Comic about living with Crohn’s disease

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I found this comic in one of the Facebook IBD support groups and it depicts the life of someone living with Crohn’s disease pretty accurately, with a little humor thrown in.

If you aren’t familiar with how it impacts someone’s daily life, be sure to give it a read.

A Cure for Ulcerative Colitis? Part 2

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In part 1, I gave some background on what ulcerative colitis is and why it may be due to a bacterial infection rather than an autoimmune disease as commonly believed. In this second part, I will discuss a radical, unknown treatment that could potentially cure ulcerative colitis patients using stool samples from people in order to get all the trillions of bacterial microbiota necessary for health.
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A Cure for Ulcerative Colitis? Part 1

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The following information was written to the best of my ability to be as accurate as possible, yet I am not a doctor, nor a trained researcher. Please let me know of any mistakes below.

What is Ulcerative Colitis?

Ulcerative colitis is an inflammatory bowel disease that usually only affects the mucosal and first tissue layer of the colon. Ulcers in the colon cause pain and bleeding, leading to symptoms of bloody diarrhea with mucus.
The condition can range from mild to severe and exact symptoms can vary from person to person.
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